Research & Education
Education and Training:
Clinical Care
There are many excellent resources available to those who wish to learn more about caring for the dying and their families.
The information included in this section provides only a sample of what is available in the field. The conferences and courses listed are some of the provincial and national events that are currently offered on a regular basis. There are also many international conferences that you may wish to consider and the national hospice or palliative care association of that country may be a place to start.
Catalogue companies have extensive lists, of books, journals and videos, that they will be pleased to send you. In this section, there is a small selection of more recent publications that deal with different aspects of death, dying and bereavement: children, spiritual aspects of care, general hospice palliative care information, etc. Most hospice palliative care programs have excellent bibliography lists and libraries as well.
The journals listed can usually be found through hospital, university, college or public libraries. The B.C. Hospice Palliative Care Association or Canadian Palliative Care Association offices may also be able to direct you to find the journal in question.
Administration and Funding:
If you are looking for resources in the area of fundraising, planned giving, public or board relations, there are excellent organizations that offer materials, guidance and educational opportunities. Check with your local university, college or United Way office for information and guidance about courses and materials. The Canadian Association of Gift Planners is another organization that has a number of groups across the country. They may also be aware of activities in your region.
Canadian Association of Gift Planners
P.O. Box 4084
Edmonton, Alberta
T6E 4S8
Phone: (780) 430-9494
Fax: (780) 438-4837
E-mail: cagp@tnc.com
Conferences:
British Columbia
British Columbia Hospice Palliative Care Association (BCHPCA)
Room 502, Comox Building
1081 Burrard Street
Vancouver, B.C. V6Z 1Y6
Phone: (604)631-5821 or 1-877-4BCHPCA/424722
Fax: (604)631-5822
Email: bchpca@hospice.org
AGM and conference (the last weekend in May)
B.C. Oncology Nurses Group (BCONG)
Vancouver Island Cancer Centre
1900 Fort Street
Victoria, B.C. V8R 1J8
Annual conference and meeting in May
B.C. Centre for Excellence in HIV/AIDS
Comox Building
1081 Burrard Street
Vancouver, B.C. V6Z 1Y6
Phone: (604)682-2344
Annual conference in November
Hospice Palliative Services Central Okanagan
c/o Anne O'Keefe
2255 Ethel Street
Kelowna, B.C. V1Y 2Z9
Phone: (250)862-4300 ext 7544 Fax: (250)862-4101
Annual End of Life Issues Conference (bi-annual)
Lions Gate Palliative Care Program
231 East 15th Street
North Vancouver, B.C. V7L 2L7
Phone: (604)984-5808 Fax: (604)984-5858
Annual conference (the first weekend in March)
Victoria Hospice Society
1900 Fort Street
Victoria, B.C. V8R 1J8
Phone: (250)370-8715 Fax: (250)370-8625
Annual Spiritual Care Conference (in February)
Alberta
Caritas Health Group Annual Palliative Care Conference
Grey Nuns Community Health Centre
Room 4324, 1100 Youville Drive West
Edmonton, Alberta T61 5X8
Phone: (780)450-7727 Fax: (780)450-7700
Ontario
Humber College School of Health Sciences Annual Palliative Care Conference
Business and Industry Services
205 Humber College Boulevard
Toronto, Ontario M9W 5L7
Phone: (416)675-5077 Fax: (416)675-0135
Web site:www.humberc.on.ca/~pallcare
King’s College Centre for Education about Death and Bereavement
King’s College
266 Epworth Avenue
London, Ontario N6A 2M3
Phone: (519)432-7946 Fax: (519)432-0200
Annual Conference on Death and Bereavement
Quebec
International Congress on Care of the Terminally Ill
Events International Meeting Planners
759 Victoria Square, #700
Montreal, Quebec H2Y 2J7
Phone: (514)286-0855 Fax: (514)286-6066
Biennial conference in even numbered years
Canadian
Canadian Palliative Care Association (CPCA)
131C-43 Bruyere Street
Ottawa, Ontario K1N 5C8
Phone: (613)241-3663 or 1-800-668-2785 Fax: (613)562-4226
Biennial conference in odd numbered years
Canadian Association of Psychosocial Oncology (CAPO)
c/o St. Boniface General Hospital
409 Tache Avenue
Winnipeg, Manitoba R2H 2A6
Phone: (204)237-2449 Fax: (204)235-3880
Annual conference
International
National Hospice Organization
1901 North Moore Street, Suite 901
Arlington, Virginia 22209, U.S.A.
Phone (703)243-5900 Fax: (703)525-5762
Several annual conferences on senior management and leadership all aspects of palliative care: ie. pain, psychosocial, etc.
International Hospice Institute
1275 K Street, N.W.
Suite 1000, 10th Floor
Washington, D.C. 20005, U.S.A.
Phone: (202)842-1600 Fax:(202)682-2127
Annual conference
Hospice and Palliative Care Study Seminar in Britain
King’s Fund Centre
190 Westbrook Road
Essex, Connecticut 06426, U.S.A.
Phone: (860)767-1620 Fax: (860)767-2746
Email: hospiceall@aol.com
Annual two week seminar in Great Britain, with field experience
Canadian Hospice Palliative Care Courses:
There are hospice palliative care courses offered at a number of colleges, universities and centres across the country. Those listed here are either courses available in British Columbia or courses that have been taught for a number of years. Check with your local college or university to find out what is available in your community.
Langara College
Langara College Continuing Studies
100 West 49th Avenue
Vancouver, B.C. V5Y 2Z6
Phone: (604)323-5918 Fax: (604)323-5899
Palliative Care Certificate Program
Victoria Hospice Society
1900 Fort Street
Victoria, B.C. V8R 1J8
Phone: (250)370-8715 Fax: (250)370-8625
1. Psychosocial Care of the Dying & Bereaved
2. Medical Care of the Dying
Grant MacEwan Community College
Health and Community Studies Division
Admission Assistant
P.O. Box 1796
Edmonton, Alberta T5J 2P2
Phone: (780)497-5163
Palliative Care Certificate Program
Algonquin College, School of Continuing Education
Room C101
1385 Woodroffe Avenue
Nepean, Ontario K2G 1V8
Phone: (613)727-4724, ext. 7618 Fax: (613)727-7684
Distance multidisciplinary course
McMaster University
Continuing Education Faculty of Health Sciences
Chedeke Campus
1200 Main St. W.
Hamilton, Ontario L8N 3Z5
Phone: (905)525-9140, Ext. 22671 Fax: (905)572-7099
Annual palliative care course for physicians
University of Victoria
School of Nursing
P.O. Box 1700
Victoria, B.C. V8W 2Y2
Phone: (250)721-7954 Fax: (250)721-6231
Distance education credit course
Video/Book Catalogue Companies:
There are a number of different catalogue companies: some who specialize in the area of death, dying and bereavement. Most companies produce new catalogues each year.
Aquarius Health Care Videos
5 Powderhouse Lane
P.O. Box 1159
Sherborn, Massachusetts, 01770
Phone: (508)651-2963 Fax: (508)650-4216
Email: aqvideos@tiac.net
Baywood Publishing Company, Inc.
26 Austin Avenue
Amityville, NY
U.S.A. 11701
Phone: 1-800-638-7819 Fax: (516)691-1770
Email: baywood@baywood.com
Compassion Books
477 Hannah Branch Rd.
Burnsville, NC 28714
Phone: (704)675-5909 Fax: (704)675-9687
Email: Heal2grow@aol.com
National AIDS Clearing House
1565 Carling Ave., Ste. 400
Ottawa, Ontario K1Z 8R1
Phone: (613)725-3729 Fax: (613)725-1205
National Hospice Organization
Suite 901, 1901 North Moore St.
Arlington, Virginia
U.S.A. 22209
Phone: (703)243-5900 Fax: (703) 525-5762
Research Press
Colwell Systems Limited
60 Rankin Street
Waterloo, Ontario N2V 1V9
Phone: 1-800-265-3375 Fax:(519)747-0062
Email: order4csl@aol.com
The Haworth Press, Inc.
10 Alice Street
Binghamton, NY 13904-1580
Phone: 1-800-HAWORTH Fax: 1-800-895-0582
Email: getinfo@haworth.com
Journals
The following journals are widely available. Contact your local hospital, college or university library for a list of the journals they subscribe to. The BCHPCA or CPCA offices may be able to provide addresses for these and other journals.
• American Journal of Hospice and Palliative Care
• British Medical Journal
• Death and Dying
• European Journal of Palliative Care
• Illness, Crises and Loss
• Journal of Pain and Symptom Management
• Canadian Journal of Palliative Care
• Journeys
• Oncology
• Palliative Medicine
Web Sites
The following web sites are simply a place to start. As with the other resources, there will be many more pages available; many of them will be found through their links with the following sites.
• www.hospicebc.org
• www.hospicefoundation.org
• www.growthhouse.org
• www.npr.org/programs/death/bibliogra.html
• www.acponline.org/public/h_care/contents.htm
Books
There are many excellent books that cover a wide range of topics related to dying, death and bereavement. Check with your local library or book store.
Children and Grief
Fiction
Nana Upstairs and Nana Downstairs
Tomie de Paola
A young boy’s special relationships with his two grandmothers and his feelings when they die.
Lifetimes
R. Ingpen & M. Bryan
A simple story of beginnings, endings and lifetimes of plants, animals and people.
Where’s Jess
Marv & Joy Johnson
Addresses some of the questions a young child may ask when a sibling dies.
Aunt Mary Buttons
Diane Jarvis-Jones
An aunt prepares her niece for the aunt’s impending death.
Larry Red and Blue
Diane Jarvis-Jones
A young friend is killed by a car; describes a 7 yr. old’s reactions.
The Tenth Good Thing About Barney
Judith Viorst
When his cat dies, a young boy tries to remember ten good things about him.
A Taste of Blackberries
Doris Smith
Describes a boy’s friendship with Jamie and his feelings when she dies.
So Long Grandpa
Elfie Donnelly
Michael witnesses his grandfather’s deterioration and death from cancer.
Tunnel Vision
Fran Arrick
Reactions of family, friends snf teacher when a 15 yr. old boy hangs himself.
The Garden is Doing Fine
Carol Farley
Corrie’s father is dying. His interest in his garden leads to the realization that life continues in his children.
Non-fiction
How it Feels When a Parent Dies
Jill Krementz
Children (ages 7-16) describe their feelings when a parent died.
Learning to Say Goodbye
Eda LeShan
Addresses the questions and feelings a child has when a parent is sick and dies.
Too Old to Cry, Too Young to Die
Edith Pendleton
Teens describe their experiences living with cancer, side effects, family, friends, etc.
Hospice Care for Children
A. Armstrong-Dailey & S. Goltzer
Professional resource book for pediatric hospice care.
Helping Children Cope with the Loss of a Loved One
W. Kroen & P. Espeland (eds)
Use narrative and case studies to explain children’s understanding of, reactions to death.
Books to Help Children Cope with Separation and Death
J. Bernstein
A listing of resources.
Adults
Caregivers
Final Gifts
M. Callahan & P. Kelley
Communication with dying people
How Can I Help?
Ram Dass
A Zen perspective on caregiving
The Courage to Laugh
Allen Klein
Inspirational look at humour, hope and healing in the face of death.
Caregiving: Hospice-Proven Techniques for Healing Body and Soul
Douglas Smith
Ways to improve quality of care for those who are dying.
Final Choices
Michael Vitez
Examines tough choices re medical care, home care, hospice, assisted suicide, etc.
AIDS Care
Pain in HIV/AIDS
D. Carr & R. Addison
Discussion of pain & its treatment.
Module of Palliative Care: The Comprehensive Guide for the Care of Persons with HIV disease
F. Ferris et al.
Multiple AIDS-related Loss
David Nord
Discusses the losses associated with AIDS and ways to heal.
AIDS: Answers to Questions Kids Ask
AIDS: What Teens Need to Know
Barbara Christie-Dever
Informative questions and answer format.
Palliative Care References
Dying Well
Ira Byock
How families find reconciliation when death approaches.
New Themes in Palliative Care
D. Clark & S. Ahmedzai (eds)
Essays on key themes in palliative care, intended for professionals.
The Last Dance: Encountering Death & Dying
A textbook for death and dying courses that gives good introduction to the main issues.
Medical Care of the Dying
Victoria Hospice Society
A text on palliative care.
The Primer of Palliative Care
Porter Storey
Overview of hospice and palliative care issues, for a general audience (American Academy of Hospice and Palliative Medicine).\
Cross Cultural Caring
Conscious Dying
Benite Reyes
Study of Spiritual beliefs/practices related to conscious dying and transition to the afterlife.
Cross-Cultural Caring: A Handbook for Health Care Professionals in Western Canada
N. Waxler-Morrison, J. Anderson & E. Richardson (eds.)
Information about health beliefs & practices of several cultural groups.
Caring for Dying People of Different Faiths
Rabbi Julia Neuberger
Considers the history and beliefs of several faiths, yet emphasizing the individual’s needs.
Grief and Loss
So Will I Comfort You
Jenny Kander
Support for bereaved patients & others.
Sibling Loss
Joanna Fanos
Sibling bereavement and its differences.
A Grief Observed
C.S. Lewis
A personal tale of grieving his wife’s death.
In the Midst of Winter: Selections from the Literature of Mourning
M..J. Moffat
Selections of poetry and prose about grief.
Now Childless: A Book for Parents Whose Only Child or Children Have Died
D. Hackett & K. Bevington
Discusses losing a child and the parenting role.
Grief, Dying and Death
Parental Loss of a Child
Therese Rando
Clinical study and research on these topics.
Living with Grief
Living with Grief When Illness is Prolonged
Living with Grief After Sudden Loss
Kenneth Doka (ed)
These are series of articles, resource materials written by experts on these areas of grief.
After Suicide
John Hewett
Guide for dealing with the aftermath of suicide.
Spiritual/Pastoral
Dying, Yet We Live
Paul Chidwick
Considers definitions of spirituality, addresses issues commonly raised
How We Die: Reflections on Life’s Final Chapter
Sherwin Nuland
Stories about people who are addressing their own mortality.
The Grace in Dying: How We Are Transformed Spiritually as We Die
Kathleen Singh
Helps identify patterns of spiritual pathways through dying and death.
Kitchen Table Wisdom
Naomi Rachel Remen
Inspirational book on dealing with serious and chronic illness.
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